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More Research, Advocacy Can Improve PAH Disparities


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SOURCES:

Chest: “Delay in Recognition of Pulmonary Arterial Hypertension,” “Race and Sex Differences in Response to Endothelin Receptor Antagonists for Pulmonary Arterial Hypertension.”

CDC: “Health Disparities.”

American Lung Association: “Learn About Pulmonary Arterial Hypertension.”

Journal of the American Heart Association: “Mortality in Pulmonary Arterial Hypertension in the Modern Era: Early Insights From the Pulmonary Hypertension Association Registry.”

Kingman, M., et al. Increasing Awareness about Pulmonary Arterial Hypertension Treatment for Nurses. StatPearls Publishing, 2022.

Mayo Clinic: “Pulmonary Hypertension.”

Charles Vega, MD, clinical professor of family medicine, University of California, Irvine.

Stephen C. Mathai, MD, associate professor, The Johns Hopkins Pulmonary Hypertension Program.

Frontiers in Aging: “Sex Differences in Pulmonary Hypertension.”

Advances in Pulmonary Hypertension: “Health Disparities in Pulmonary Arterial Hypertension and the Impact of the COVID-19 Pandemic.”

European Respiratory Review: “Sex and Gender in Pulmonary Arterial Hypertension.”

Pulmonary Circulation: “Racial and Ethnic Differences in Pulmonary Arterial Hypertension,” “Time to Diagnosis of Pulmonary Hypertension and Diagnostic Burden: A Retrospective Analysis of Nationwide U.S. Healthcare Data.”

Current Problems in Cardiology: “Urban-Rural Disparities in Pulmonary Hypertension-Related Mortality Between 2004 and 2019: A Call to Improve Access to Specialty Care Centers for Rural Residents in the United States.”

Mei-Sing Ong, PhD, assistant professor, Harvard Pilgrim Health Care.

European Respiratory Journal: “Traffic Exposures, Air Pollution and Outcomes in Pulmonary Arterial Hypertension: A UK Cohort Study Analysis.”

Elizabeth Joseloff, PhD, vice president of quality care and research, Pulmonary Hypertension Association. 

Annals of the American Thoracic Society: “Secular and Regional Trends among Pulmonary Arterial Hypertension Clinical Trial Participants.”

Proceedings of the American Thoracic Society: “Patients with Pulmonary Arterial Hypertension in Clinical Trials: Who Are They?”

American Journal of Respiratory and Critical Care Medicine: “Health Disparities in Patients with Pulmonary Arterial Hypertension: A Blueprint for Action. An Official American Thoracic Society Statement.”

Frontiers in Drug Discovery: “Novel and Emerging Therapies in Pulmonary Arterial Hypertension.”

For Long-Term Treatment of Pulmonary Arterial Hypertension, Canadian Agency for Drugs and Technologies in Health, 2015.

BMC Health Services Research: “The Economic Burden of Pulmonary Arterial Hypertension (PAH) in the U.S. on Payers and Patients.”

Pulmonary Hypertension Association: “Advocacy Action Center.”

The American Journal of Managed Care: “Health Insurance and Racial Disparities in Pulmonary Hypertension Outcomes.”



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